Wednesday, August 5, 2009

Kiera FINALLY trying CPAP (3yrs old next week!)

So I will add a funny picture to this post as soon as I locate the other camera. Kiera had a great appointment Monday, and she is on short 30 minute CPAP trials twice a week, and we are doubling the time each week. This is BIG for us. It doesn't mean any equipment changes or anything at this point, but what we get to do is drop the rate on the vent to ZERO twice a day. She still receives pressure support and oxygen but all the breathing is her own during these trials. Dr. Glasser hopes that by Halloween we might have Kiera OFF THE VENT during the day! (Of course, barring any serious illnesses).

In addition, we have some big changes to be announced in a future post. More later. Gotta check my spaghetti on the stove.

Okay, I'm back from correcting a few problems. Kiera chewed a hole in her g-tube extender and was "feeding the floor." I did experiment with something, and she is actually more willing to open her mouth for a syringe than for a spoon, so I gave her 2 cc's of milk orally and then tried 2 cc's of baby food via syringe. It actually went pretty well. Hmm.

So here is a funny picture of Kiera...


We can't crate train a dog, but we can crate train our kid.

She hasn't yet figured out how to climb out.

2 comments:

K said...

That is awesome news!! I'm sure she's going to do great.

Mom2Juliana said...

Yeah Kiera!!! I am so excited for her. I could only imagine your excitment. Being vent free after almost three years.... I hope everything goes well. I will be saying extra prayers for her this week. Glad the syringe thing is working out for you. Good Luck!