Monday, May 3, 2010

Kiera is on the upswing lately (knocking on wood)

I know I have been a little lax in posting. Teaching middle school this year has been really keeping me more than busy (and very stressed) considering that I stand by my previous decision that middle schoolers should be locked up till they are 14. :) I have also become a teensy bit addicted to Facebook which has become the recipient of more of my photo posts. I do plan to continue the blog for health updates and some pics...don't worry. I just have to remember to log in. I am sure I will have more time once I get the 6th and 7th graders off my back.

Kiera seems to be on the upswing the last few weeks. She is climbing the walls (or at least the TV entertainment center). We finally came a little bit down on her pressure support, but are at least a few weeks away from trying CPAP again. It was getting warm out and finally motivating me to look forward to getting Kiera outside, and then we had a freeeezing cold snap that kept her away from her friends' birthday party Saturday, so I was a little disappointed since it is one of thew few parties she gets invited to.
I am really excited today. I signed Kiera up for a fun program that makes cross stitch quilts for children with medical problems. I did it a while back in 2008 or 2009, and actually forgot that I had submitted the entry. Then they contacted me a few weeks ago to let me know the quilt was finished and ask where to send it. It just arrived about an hour ago. Kiera is napping, so she hasn't even seen it yet, but it is GORGEOUS! I am overwhelmed. It is just more lovely than I could have imagined. She is going to LOVE it! Kiera has been obsessed with watching Aladdin lately. She still loves Beauty and the Beast and Little Mermaid. We also play the soundtracks of the same 3 faves up in her bedroom at night and she just bounces in her bed out of excitement. I kind of want to got over to her pack 'n play right now and wake her to see how she likes it. So instead, I am letting her sleep and posting a few pics.
Kiera is using more and more sign language lately. She loves watching Signing Time and is expanding her sign vocabulary by leaps and bounds. She can "sing" (sign) the whole "Silly Pizza Song" which is challenging for most adults. It is exciting to see her mimic signs and finally use them to communicate a little bit. I just ordered the audio cd's for some of the songs and a few more dvd's to help her add to her repertoire.

8 comments:

Rachel P said...

What a beautiful quilt! My daughter would LOVE to have one like that. She's a little obsessed with princesses lately, especially Arie and Belle.

Unknown said...

Started to follow your blog! Amazing story and can't wait to read more! <3 Prayers and thoughts1

Ready Watcher said...
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Ready Watcher said...

Beautiful pictures and a wonderful story.

CannaMilf said...
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CannaMilf said...

It's nice to see your precious little girl making progress. God's blessings to y'all.

blest said...

Dear Mum & Dad of Kiera Rose. Your story is an amazing mix of agony & extacy.But do you know that we have a wonderful healer who can make all things right? His name is Jesus. He has brought Kiera Rose thus far and I assure you that her total healing is also possible in His mighty name.Keep working and keep praying in his precious name.I will be praying too.Looking after dogs is a full time job.Try cutting out the added responsibility to avoid the stress.

Kiera Rose said...

Funny, "blest"...I would say the stress of raising teenage step-sons far outweighs any stress from my dogs. Maybe I can cut THEM out? If you actually knew me, you would know that I have far bigger stessers in my life than dogs. Your platitudes have been heard. :)