Okay, I know I've been quiet in this forum, but life has pretty much been routine for a little while. We are still waiting with bated breath for respiratory counts in the PICU to decrease enough that we can get Kiera in for an elective bronchoscopy and start looking at procedures for possible decanulation. Things may step up in activity soon.
The BIG news is...Kiera signed potty and went #2 in the potty for the first time ever! (Yes, I realize she will be 5 in August). I don't know how consistent this will be, but it's certainly a first step.
Kiera's First Love, July 2007
Oh, Daddy, you're so handsome!.
Kiera's NICU Days
I didn't start the blog till Kiera was 6 months old and in danger of dying; so here are some early days pics for those who didn't know her when she was so small.
Mommy's first chance to hold Kiera on day 2, just over the heated bed.
First Kangaroo Cuddle at 5 days old, 1 lb 6oz, she lost a little weight like all babies after birth.
2 lb princess
Take Daddy's hand
Mommy gives Kiera a sponge bath, weight about 3 lbs
In the 3 lb range, the blanket is a security blanket or burp cloth size, folded in half. When I got it as a gift before she was born, I thought, "What a ridiculously small blanket!" It ended up being just perfect for her.
Clothes my grandma knit for me, I'm about 4 lbs, watch me self extubate! :)
Halloween 2006, 4 lbs 4 oz, Mommy made a Tinkerbell Costume, Kiera was already "actual size."
Thanksgiving 2006 about 6 -7lbs, first 0-3 month sized outfit
Christmas 2006, 8-9 lbs, trach ties being used as head gear to try to keep her from extubating again before her trach surgery
January 26th 2007, post trach surgery, restraints to keep her from pulling on it, 10lbs, very puffy from steroids and pulmonary hypertension
Our Valentine in an induced coma after pulmonary hypertensive crisis, 2 wks after trach, 30% chance of survival
3 comments:
Wait - last post was no vent and now she's in the PICU? What happened?
She's not in the PICU. She is at home and doing fine. She needs to schedule an ELECTIVE bronchoscopy to see if her airway is ready to get the trach removed, but they would need to admit her and don't want to if there are lots of sick kids inpatient.
Great news on the potty! Hope all goes well with the bronchoscopy!
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