So the countdown begins! Kiera is officially on her HME with between 1/2 liter and 1liter O2 24 hours a day! Her Ventilator has gone dormant! We are trying to schedule a bronchoscopy for her near the end of April to investigate our next step toward getting her trach tube out. Things just seem to be happening exponentially around here.
By the way, she is getting to be such a big girls. She is oh so BRAVELY attempting to eat some bites of "big girl" (baby) food.I may get adventurous and start grinding some things too. She can also put her HME back on by herself when it falls off. Sometimes she needs a little help, but when she can't do it, she holds it close to her trach tube until she can get help from an adult.
I guess that's all I really have for now. There will definitely be more to come!
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2 comments:
I just gasped out loud! This is such a far cry from what I was reading years ago when Emery was in the NICU and Kiera was headed to Texas. GO KIERA!
Wow! That is wonderful! You go big girl!
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