I can't update every detail right now. I hope it is a bad dream and that we'll wake up. Yesterday was bad, bad, bad. Kiera had a bad spell. You really won't want to know how bad. She scared everybody. She had a CT scan yesterday evening, and we're waiting for results. Dr. Glasser has gone to Houston and will give Kiera's case history to the doctor there in charge of lung transplants. Her x-rays have been showing some changes in her trach and lungs, and hopefully the CT will show what's going on. They think maybe her trachea is "folding on itself." I have no idea what can be done. She is very unstable and critical right now.
A good thing is that she had a good day with mommy and daddy after her spell and after dropping her peep on her vent, and she had a good night while extended over her boppy pillow. We played peek-a-boo and read stories and sang. Daddy made her laugh so much with peek-a-boo. She is currently fascinated with kleenex and blowing it in the air. :) She is living every minute. What an amazing girl!
Therese
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