Saturday, December 5, 2009
Subscribe to:
Post Comments (Atom)
I was born August 12, 2006, about 12 weeks early, weighing 1 lb 8 oz. I was hospitalized for 514 days, 6 months in NICU and 11 months in PICU, and I finally got to go home for the first time on January 7th, 2008. I've been working really hard to grow my lungs bigger and stronger so I can eventually get off my ventilator and do all the things other kids do. I'm pretty tough but my smile will charm you.
4 comments:
Hi,
I came across an old post on your blog when I was googling in search of feeding therapy providers in Albuquerque. I will be moving to Albuquerque next week with my family and my daughter is 6 years old and has never eaten solid food (she has a rare chromosome disorder). We have taken her to therapy here (Las Vegas, NV) and would like to find a therapist in Albuquerque. Can you recommend a therapist? Nice blog, adorable family. Thanks for any help.
Mary Ann Conte
Our doctor, Doctor Shover, is at Presbyterian Hospital and they have a feeding clinic. I have to say, I haven't been too thrilled lately because of their policies with feeding trached kids, but if that isn't your issue, I do like them. Her therapy through RCI was wonderful, although they only work with kids under 3 yrs old I think. Unfortunately, she had to switch her therapies to the school provided services, and they don't provide feeding therapy...just speech. I will call her and ask who she recommends. She is also going to get PT through an independent company starting Wednesday, and I will ask her what she knows. Hope I can help.
Thank you so much for the info. We arrived in ABQ last week and are still settling in. My daughter has been assigned Dr. Wensink at Presbyterian and has her first appointment Wednesday so I will ask about getting her into the feeding clinic. She'll start school and hopefully will have good therapies there after the New Year. Thanks again for getting back to me.
Mary Ann
I just met your sweet little girl through this blog! What a beauty! I also have a fmr preemie (23 wks) and am always very interested to see other preemies grow up.
Kiera seems to be doing great despite her "tether"! I'm so impressed. Keep up the good work!
Just thought I'd drop a note saying I admire your family, and can relate to much of what you have experienced on your preemie journey.
-Patty
Post a Comment