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Kiera's First Love, July 2007
Oh, Daddy, you're so handsome!.
Kiera's NICU Days
I didn't start the blog till Kiera was 6 months old and in danger of dying; so here are some early days pics for those who didn't know her when she was so small.
Mommy's first chance to hold Kiera on day 2, just over the heated bed.
First Kangaroo Cuddle at 5 days old, 1 lb 6oz, she lost a little weight like all babies after birth.
2 lb princess
Take Daddy's hand
Mommy gives Kiera a sponge bath, weight about 3 lbs
In the 3 lb range, the blanket is a security blanket or burp cloth size, folded in half. When I got it as a gift before she was born, I thought, "What a ridiculously small blanket!" It ended up being just perfect for her.
Clothes my grandma knit for me, I'm about 4 lbs, watch me self extubate! :)
Halloween 2006, 4 lbs 4 oz, Mommy made a Tinkerbell Costume, Kiera was already "actual size."
Thanksgiving 2006 about 6 -7lbs, first 0-3 month sized outfit
Christmas 2006, 8-9 lbs, trach ties being used as head gear to try to keep her from extubating again before her trach surgery
January 26th 2007, post trach surgery, restraints to keep her from pulling on it, 10lbs, very puffy from steroids and pulmonary hypertension
Our Valentine in an induced coma after pulmonary hypertensive crisis, 2 wks after trach, 30% chance of survival
2 comments:
wow...increase rate maybe? co2 is higher when sleeping of course. if she needs sildenafil for PH, there is also a med called Tracleer. I think it helped save Brooklyns life. Sildenafil didn't help her at all. but tracleer can damage the liver so there are monthly blood tests. I hope they can find a better setting on the LTV for her. I'm so sorry you guys are going through this. again.
Yeah. She did take sildenafil for a few years which fixed her PH. No one really knows why her CO2's are so high except that she has Chronic Lung Disease, etc.
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